Port on Monday. Poison on Tuesday. Answers in hand. Face in freefall.
Port on Monday, Poison on Tuesday — and Finally, A Doctor Who Talks To Me
Since
the second I got that call on January 9, 2025, life has been nothing but
a full-speed sprint in every possible direction. No time to think,
barely time to breathe — just appointment after appointment, test after test,
decision after decision. And every step of the way, I was left with more
questions than answers — and zero compassion to go with it.
I’m
not fragile. I can handle tough news. But what I couldn’t handle anymore was
being talked at, ignored, and dismissed every time I asked a question.
So, I did what any sane, furious person would do — I got a second opinion.
“Tell Me About You”
Enter:
Dr. Mark Juric at Mass General.
He
walked in, apologized for being late, and then hit me with a question no
one had asked me yet:
“Tell me about you.”
Not
my cancer. Me.
Do you have kids? What do you do? What matters to you?
I
was floored. After weeks of being reduced to a walking diagnosis,
someone finally saw an actual human sitting in the chair.
Then
he followed it up with:
“What do you know about your cancer?”
Not
what he knew — what I knew. Not what I’d been told, but what I
actually understood about my own diagnosis. Imagine that.
And
then came the kicker.
Dr. Juric looked at me and said,
“What can I do for you today? What do you want to get out of this
conversation?”
I
almost fell out of my chair. A doctor asking what I needed — not what
fit into their agenda, not a preloaded speech, but actual questions I wanted
answered. Imagine that.
This
is all I’ve been chasing from Dana-Farber since day one, but instead,
that’s turned into a soap opera — too many emotions, too much
defensiveness, and a general vibe that questions aren’t exactly welcome.
I
get it — they do cancer all day, every day — but somewhere along the way, they
forgot there’s a human attached to the tumor.
But
not Dr. Juric. After weeks of canceled appointments, unanswered messages, and
vague half-answers, this was the first time someone invited me into my own
care plan.
He
wanted my questions, so I gave him three. Including the biggie: How the hell
did this happen to me?
The Three Questions I Needed Answered
I
came in armed with a list, and Dr. Juric answered every single one of them
— directly, no spin, no bullshit.
Question 1: Why Not Move Chemo to Mass
General North Shore?
I
told him straight up — appointments get canceled, moved, and nobody calls me.
Surgeries are booked and canceled without warning. Reports come in, and I only
find out what's in them if I hunt people down.
If
I’m truly textbook — if TCHP is non-negotiable — and I’m already doing
radiation at Mass General Brigham locally, then why the hell wouldn’t I just
do chemo locally too?
Here’s
the deal:
Radiation is every day for six weeks, so they automatically find you the closest
in-network facility to save your sanity. Makes sense.
But
chemo? Totally different story.
Dana-Farber keeps their chemo protocols locked down tighter than Fort Knox.
Their schedules, drug combos, dosing rules — they want full control over
every drop that goes into your body.
If
I decide to pivot everything to Mass General, Dr. Juric would happily take me.
But mid-chemo? That’s a logistical nightmare. So for now, staying put at
Dana-Farber makes sense — even if their charm and personality are nonexistent.
Question 2A: Why Not Test Everything
Right Now?
Tumor
genetics, deeper pathology — why not throw every test at this thing?
Dr.
Juric’s answer:
Because right now, your body can only handle so much.
This
is where he hit me with the now-famous line:
“You don’t put the whole elephant in the refrigerator.”
TCHP
is already enough poison to hammer every system I’ve got — heart, bones, immune
system, skin — and adding more right now would cross the line from treatment
to outright assault.
There
will be time for more therapies later — after surgery, after radiation,
after we see how I respond. That’s the pivot.
Question 2B: What’s the Deal With No
PET Scan?
This
one’s driven me crazy from the start.
Every time I asked Dana-Farber, the answer was:
"We don’t do that right now."
No explanation. Just policy without context.
Dr.
Juric actually explained it — with humor and diagrams.
- A PET scan
can only see clumps of cancer cells — about 8-10 millimeters across
(pea-sized).
- It can’t see
individual microscopic cells — especially the sneaky little
HER2-positive bastards floating through my bloodstream or lymphatic system
like confetti at a parade.
This
is why chemo is non-negotiable.
Chemo poisons everything, even the invisible stuff. PET scans look for the
party, but chemo goes after the very first guest sneaking in the door.
Side Note — For Everyone Asking If
Chemo Gets Easier
No.
It does not.
This
is not a couch to 5K training plan.
Chemo is cumulative poison.
- Every round
stacks on the last.
- My bone marrow
gets weaker.
- My immune system
slows down.
- My skin,
appetite, and energy tank harder each time.
The
goal is to poison me just shy of death, while killing the cancer first. Science,
baby.
THE BIGGIE: How Did This Happen to Me?
This
is not a recurrence.
This is the same cancer, from the same DCIS in 2014, left behind
to grow into this mess.
- DCIS starts
inside the milk ducts.
- If any cells escape, they become invasive.
One
microscopic speck outside the duct? That’s all it took.
As
for how long it’s been in my lymph nodes? No one knows.
Cancer cells spread either through the lymphatic system or the bloodstream
— the famous Braintree Split analogy by Dr. Juric. Either way, here we are.
PIVOT
At the end of
our conversation, Dr. Juric asked if I minded him taking a moment to talk to me
about something — not to lecture, not to preach, but to share one thing he
wanted me to carry with me. Of course, I said yes.
He told me
there are two types of people who go through this.
The first type?
They put their heads down, throw their hands up in front of their face, and
just barge through to the end. They don’t ask questions, they don’t look
around, they just plow forward. Not right, not wrong — but they miss a lot of
life along the way.
And then
there’s the second type. That’s me. The one who asks questions, who wants to
understand, who sometimes might even get too caught up in the details — but
that’s not the point. The point, he said, is that the most important skill you
can have is knowing how to pivot.
Because this
whole process? It’s going to change. Appointments shift. Scans show things you
didn’t expect. Surgery plans flip upside down overnight. Just like that call I
got the night before surgery — suddenly we’re talking lymph nodes and not just
breasts. Those moments demand a pivot. And how you pivot is everything.
For me,
pivoting means I need answers. I need someone on the other end who will talk
with me, not at me. And Dr. Juric made it clear — he’s that guy. He’s on my
team. Another person I can turn to, bounce things off, and actually have a
conversation with — not a lecture, not a defensive wall, a conversation.
Welcome to The Show: The Science Experiment Update
And now, for
those of you dying to know the latest update from the ongoing science
experiment called “JJ on TCHP and The Tumor That Should Never Have Been”…
Hair loss — almost
complete.
Eyebrows —
clinging to life.
And my face? The
skin below my mouth?
Gone full
marionette puppet. That’s the area known as the marionette lines, where your
cheeks, chin, and gravity get together and decide your face should now live
somewhere near your collarbone.
Combine:
🍑 Zero peach
fuzz to hold it up
👧No estrogen to
plump it up (thanks chemo!)
💥Collagen in
full retreat
💦Dehydration
for fun
🪐And gravity
doing what gravity does
I’m bald, melting, exhausted — but at least I finally have real answers and a doctor who sees me — not just my chart.
THE
CHALLENGE - Ride or Die Check-In: Your Pivot Moment
What was your pivot
moment — the one where life yanked the rug out and you had no choice but to
change course?
Maybe
it was the day you looked in the mirror and saw your first chin hair, standing tall like a
monument to middle age, and you knew right then — the rules had changed.
Or
maybe it was the day you got the phone call that your parent needed care and suddenly,
you became the adult in the room. That shift from being someone’s kid to
being their caregiver — that’s a pivot.
Pivot
moments are when life says, “Surprise! We’re not doing it that way anymore.”
So tell me:
💓What was your pivot moment?
💕What triggered it?
💗And now that you’ve been
through it — what’s
your one piece of wisdom you’d pass down to the rest of us?
Serious,
funny, raw — I want it all.
Comment, text
me, message me, or just yell it into the void — I’ll hear you.
My pivotal moment was also being diagnosed for the 2nd time with cancer. (Wtf right, not supposed to happen) I was definitely the first type of person described and just plowed right through tx headfirst to get it done. Then on the last day of tx when I rang the bell, I felt like I finally woke up. The simple act of ringing the bell was so raw, and full of emotions I can’t even describe. It didn’t even matter if I didn’t know if technically I was “cancer free” or not. So when your time comes bring all your loved ones and you ring that fucking bell with all your might, and cry (sob)!because it will feel so good and then you go celebrate life!!!❤️❤️❤️❤️
ReplyDeleteIt had been 5 years of medications, ultrasounds, surgeries, appointments, blood tests. I was exhausted. But still I showed up to get that blood test- the one I knew would reveal that I wasn't pregnant. Again. Disappointment. Again. My feet were so heavy they felt like lead. But I mustered up some cheer and a smile for the lab tech- ready for when she said "This could be the one!". It wasn't.
ReplyDeleteWhen I got home and listened to the inevitable answering machine message (I stopped having them call me at work), I just let out a long sigh and thought "We need a vacation!".
We went to Aruba and didn't talk about any of it. We just wanted to be on vacation from everything. We rested, we recharged, we had fun.
When we got home, we decided we didn't want to do this anymore. Was it more important to deliver a baby or to become a family? We pivoted right then and chose Door #2. We started researching adoption agencies, going to informational meetings and preparing ourselves for this new plan.
From the time we made the decision to adopt to When we brought our first baby home- was 9 months. We brought Kyle home Mother's Day weekend, 2002! Best pivot of my life!
As a "chosen one" this pivot story brought me tears of joy
DeleteMy pivot moment came early in life at 27 when my cousins daughter of 3 died suddenly one afternoon of an incurable brain stem disease. It is genetic and fast. Erin was here in the morning and dead by the time her mother got her to the emergency room. I had never seen anything so quick, senseless and sad. It made me realize how precious every day of life is. And though I was considered “successful” I was floundering in my life with little purpose. What the fuck was a waiting for? That moment has made all the difference in my life. Each time I falter with what to do next, what’s important and why I’m here, I recall Erin. It’s motivated me everytime to embrace life, try something new and scary and just LIVE. Because each day is a gift.
ReplyDeleteI have had two major pivot moments as a parent. The first was in September 2003 when we confirmed Noah’s autism diagnosis. The second was November 2019 when we confirmed his Epilepsy diagnosis. We chose neither path for him, but, nonetheless, he (and we) are on both. I have no real wisdom or magic morsels to share about either condition other than we get up each day and do our best to live with both while trying to enjoy our lives together. I am following you here and think of you often. Sending lots of love and hugs your way!
ReplyDeleteJJ, thank you so much for sharing all of this detail. I'm wondering if I should never have let them biopsy me when they found my DCIS. But the best I can do now is get mammograms. Thank you for compelling me to do by sharing your story because as you know, I was initially going to blow it off because I thought I was in the clear.
ReplyDeleteMy first pivot was when my dad was diagnosed with pancreatic cancer. I was just out of college and planning to move to California to live with my boyfriend who graduated 2 years ahead of me and moved out there for a job. When I found out about my Dad, I didn't even have to think about it. I told my boyfriend I was staying put, which forced him to make a pivitol decision. He quit his job and moved back here. Before Dad passed he gave us his blessing IF we wanted to get married. Dad made it a point to tell me in private that just because I had his blessing didn't mean I couldn't change my mind later on if I wanted to :-)
So many pivotal moments, but the ones that always stick with me are: my breast cancer diagnosis and feeling very sad and alone at first but then shifting to realize how strong I am. When I'd hold my breath during radiation, I'd think about how my body was fighting off cancer and I could do anything. I remind myself of my physical and mental strength any time I feel like I can't do something. Another huge one was losing my job in 2022 (just months after finishing radiation, no less) after I helped launch my company and built the Marketing team. It was like a slap in the face and I still feel bitter, but I realized the only way through it is to keep going and not take it personally. I don't wish unemployment on anyone, but am always willing to network with anyone looking for a job and offer them encouragement, because it is not personal and corporate America sucks!
ReplyDelete